Tag Archives Colitis

Who am I? A year of learning about myself, more than I ever thought I could be!

I caught up with a good friend of mine for lunch today. We always talk about random things and deep dive on any issues we might have and untangle thoughts and feelings to get at the core of things.

It’s wonderful to have friends like that and she is an absolute gem!

We talked about my health which has been a bit of a dumpster fire this year. My friend talked about my identity as a healthy and fit woman. She is correct, my identity is very much wrapped around health & fitness and being a role model for women in their 60s.

Heck, one of the reasons I started this blog was to talk about health & fitness and how to stay well as one ages!

My family of origin has and is riddled with heart disease, metabolic illness, and COPD.

My whole life and part of my motivation to stay healthy and fit was to keep, primarily, heart disease at bay and I can say I have been overwhelmingly successful in this endeavour.

So, you can imagine my utter shock when cancer decided to knock on the door earlier this year. Specifically, breast cancer. No-one in my family has had breast cancer and it took some time to wrap my head around it all and what that meant for my health, fitness, and self-identity.

This year has had enough plot twists to write a book about. On top of the breast cancer, I was diagnosed with non-Hodgin Lymphoma, Lymphocytic Colitis and then Sudden Sensorineuro Hearing loss in my left ear – meaning I will need surgery to be fitted with a Cochlear Implant.

In amongst all of these hectic challenges, I have kept my spirits up, dealing with one thing at a time. I have kept up my exercise regimen when I could.

There were some weeks when recovering from a procedure or two, that I have had to take a break to rest and recuperate. I have had to take the time to allow my body and spirit time to rest and recover and to get better.

If I couldn’t go for a run, I’d go for a brisk walk. If I couldn’t go to the gym to do weights training, I’d pick up an extra yoga or Pilates class. Going for a swim is always a nice option, gentle, weight bearing and slow. Dancing is a constant too.

If it was all too much, then resting, reading, walking my dog, and spending gentle time with family and my friends were the order of the day!

I also had some emotional turmoil to deal with this year. A person whose sole purpose in life seemed to be to relentlessly bully me via my blog and to get his minion to do likewise.

Generally, I am very much of the opinion that bullies are just cowards that if you ignore them, they eventually go away. But this one was unrelentingly persistent.

In the end I got rid of them, but it took some work to do so and if they ever rear their heads again, I will go straight to the Magistrate and get an AVO. I have all the written evidence and witnesses of in-person bullying and harassment. Plus, nasty sh*t sent to friends of mine, that has also been kept as evidence.

All up the year has presented some unique issues for me to deal with and overcome.

But you know what? I am resilient, I am strong, I fully believe my fitness has enabled me to deal with the health issues effectively. Exercise and eating well also helps with emotional upheaval.

The other thing I have in my favour is a supportive family and the best friends and community. They literally wrap themselves around me like a warm hug!

I am blessed and honoured and humbled by the love and support I have received this year.

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Breaking Up with My Doctor: Trusting My Gut and Advocating for My Health

They say that doctors are our partners in health, guiding us through the intricacies of our well-being. But what happens when that partnership falls short, leaving you feeling unheard and dismissed?

For years, I’ve grappled with ongoing gastrointestinal issues that have turned my life into a roller coaster of discomfort. Today, I’m sharing my journey of frustration, persistence, and ultimately, self-advocacy.

It’s a story of trusting my gut – both literally and figuratively – and finally finding the answers I needed after years of being dismissively brushed aside.

A Long Road of Gastrointestinal Struggles:

The road of gastrointestinal issues has been a long and winding one for me. Some days were manageable, but others felt like a battleground within my own body.

If you’ve experienced these struggles, you’ll understand the frustration, pain, and sense of helplessness that comes with them. Despite the challenges, I knew deep down that something was amiss, and it was time to take action.

Dismissals and Questionable Diagnoses:

My journey began over 10 years ago with conversations with my regular doctor who, time and again, dismissed my concerns. “It’s just a bug,” he’d say nonchalantly, as if my pain and discomfort were inconsequential.

Last year he diagnosed me with “Diverticulitis” without doing any testing at all, just assumption based on my age (female over 60). He was incorrect as tests I had this year cleared me of diverticulitis.

I even tried a different GP (General Practitioner/doctor) and I vividly remember her reaction when I mentioned my dinner of chickpea curry when she asked what I had eaten the night prior. She laughed, labeling my meal as the root cause of my issues. Even after assuring her that chickpeas weren’t a daily staple, but gut issues were an ongoing problem, she dismissed my concerns without a second thought.

These interactions left me feeling unheard and invalidated and questioning if anyone would take my plight seriously.

A Year of Health Struggles and Rediscovering My Voice:

As this year began, my health took a turn for the worse. Amidst battling other serious health issues, my gastrointestinal problems intensified. My doctor’s dismissive stance persisted, attributing everything to a “it’s just a bug going around.”

Then, a sobering realization struck him (on my third visit to him as I had been getting sicker and sicker) – he had forgotten about my ongoing cancer battle. It was this moment that led him to finally order a colonoscopy and in his own words “I don’t want to be sued.” Not that he was in the least concerned about my health, just that he didn’t want to be legally liable!

He then proceeded to tell me a horrendous story of a patient he knew (not sure if it was his patient). This poor man had cancer and an underlying inflammatory bowel disease which had not been picked up. After a series of chemotherapy treatments, the man’s bowel ruptured as the bowel wall had thinned due to the chemo. My doctor was concerned the same would happen to me!

Finally, A Long-Awaited Diagnosis:

The colonoscopy became a turning point in my journey. Biopsies were taken, and the results held the key to my years of agony. The diagnosis: Lymphocytic Colitis. Here is a link for further information if you are interested – Lymphocytic Colitis.

Finally, a name to the pain I’d been enduring, a validation that I wasn’t imagining my struggles. The revelation came with a mix of emotions – relief, frustration, and determination.

Lymphocytic Colitis is treatable, but it is not curable. It can flare up again. I am currently undergoing 6 weeks of steroid treatment to see if that calms it all down.

Trusting My Gut (literally) and Advocating for My Health:

Through this tumultuous journey, I learned the importance of trusting my gut, both in the literal and metaphorical sense. If something doesn’t feel right, it’s crucial to persist until you find the answers you deserve.

Our bodies have a way of communicating when something is wrong, and it’s up to us to advocate for the care we need. My experience taught me that self-advocacy is a vital component of our health journey, and seeking second opinions can lead us to the right path.

My journey of battling gastrointestinal issues, dismissals, and incorrect diagnoses has ultimately been a testament to the power of persistence and self-advocacy. The road to my Colitis diagnosis was fraught with frustration, but it also rekindled my determination to be my own health advocate.

As I break up with my dismissive doctor, I hope my story serves as a reminder to all that your health matters, your concerns are valid, and your voice deserves to be heard.

If you ever find yourself in a situation where you’re not being taken seriously, remember: trust your gut, stand up for yourself, and keep pushing for the answers you deserve.

image credit:egakusdiarto

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